Research
One of the aims of Endometriosis South Coast is to provide up to date and relevant research to those that want to access it. There will be regular updates here of what we think may be of interest. Jodie’s work will also be published here when it is ready.
Exciting news—from our friends at George Mason University College of Public Health and EndoBlack, Inc! Please spread the word!
Do you know that extremely painful and debilitating cramps are not a normal part of life?
No one should miss out on school or time with family and friends because of extremely painful cramps.
Symptoms usually start in adolescence, but because of stigma and shame, most girls don’t receive a diagnosis for 10 years. That time is even longer in communities of colors
Our friends at Endo Black Inc. and George Mason University College of Public Health recently launched an exciting project to help young women and girls with symptoms of endometriosis. Please support by either participating or sharing.
The project, SurrEndo, is an app-based game designed to break down stigma and foster support for Black and Latina young women and girls, ages 14-25, dealing with endometriosis. Plus, it’s a chance for players to help us learn more about how gaming can help people with endometriosis—all while having fun!
If you’d like to learn more about how to become involved, please click on the link below:
https://chhs.co1.qualtrics.com/jfe/form/SV_cAwGbBaYyR3fXAG
You can also email the research team, led by Dr. Jhumka Gupta at
Research Study on Endometriosis Among Transgender, Gender-Diverse, and Non-Binary Individuals
Zofia Szaprowska is a third-year psychology student at the University of Derby and is looking for participants to take part in her undergraduate research study, which aims to explore the lived experiences of endometriosis-related healthcare among transgender, gender –diverse, and non-binary (TGDNB) individuals with endometriosis living in the United Kingdom.
Taking part in the study involves a one-off interview conducted via Microsoft Teams, lasting approximately 45–60 minutes.
To take part you must meet the following criteria:
· Be aged 18 or over;
· Reside in the United Kingdom;
· Speak fluent English;
· Have a diagnosis of endometriosis confirmed via laparoscopy;
· Have accessed endometriosis-related healthcare in the UK;
· Identify as transgender, gender-diverse, or non-binary.
To learn more or take part in this research study, please click the following link to access the Microsoft Forms page with further information:
👉 https://forms.office.com/e/azrfxuFqZY.
For further information, please contact:
Student Researcher: Zofia Szaprowska Email: z.szaprowska1@unimail.derby.ac.uk
Research Supervisor: Dr Daniel Gaffiero Email: d.gaffiero@unimail.derby.ac.uk
Telephone: 01332 594218
Rachel is a qualitative researcher at the University of Oxford, involved in a new study about UK patients’ experiences of endometriosis with Dr Abi McNiven. We are interviewing patients about their experiences of endometriosis and of healthcare services for endometriosis in the UK. We are aiming to interview a wide range of people with diverse experiences, to make a new information and support resource on the Health Experience Insights (HEXI) website at www.hexi.ox.ac.uk about experiences of endometriosis. We will also make a short film to use at co-design workshops with patients, healthcare practitioners, and policy-makers, to work out what other resources to develop from the study.
An overview of the study is available here: https://www.phc.ox.ac.uk/research/groups-and-centres/health_experiences/Experiences-of-endometriosis
