Jodie Hughes AfN, Bsc, MSc
Founder & Research Consultant
Endometriosis care research PhD student at Roehampton University
Jodie is the founder of Endometriosis South Coast and Research Consultant.
She has almost finished PhD at University of Roehampton London, that is researching the differences in care of Endometriosis patients.
Jodie was diagnosed with Endometriosis at the age of 29 after struggling with heavy, painful periods since the age of 11. Whilst she was so young, she was told by her doctors and family that it was just the way that women in the family suffered and it was just something to get on with and put on the contraceptive pill.
It wasn’t until Jodie had her son (after multiple miscarriages) and her symptoms returned worse than they were before she was put on the pill that she sought the help of a new doctor and the word Endometriosis was mentioned, that any of the symptoms made sense. The fatigue was crippling (later diagnosed with M.E/CFS too) and the bleeding and pain were unbelievable. Many made her feel like she was absolutely crazy. The new doctor made a referral to the BSGE-accredited centre at QA Hospital in Portsmouth where she met Dr Guyer who really listened to what she had to say for the very first time. He agreed that from the symptoms that were presenting laparoscopic surgery was needed to confirm a diagnosis. During this surgery, Jodie was diagnosed with Superficial Endometriosis (symptoms do not correlate with diagnostic wording). Unfortunately, the operation only had Jodie pain-free for 2 months, so the Prostap injection was used to put Jodie into the medical menopause which worked so fantastically that she decided to have a hysterectomy at the age of 32. “This was possibly one of the best decisions I had ever made, I still has a monthly “cycle” due to becoming super aware of how her body works, and still has some pain and bleeding. But I now have more of a life than ever before”
Because of this journey Jodie lost her career as a chef and decided to apply for uni (with no GCSEs) she got accepted and completed her Health and Nutrition Bachelor’s degree with honours after writing a dissertation on stress levels of women in Portsmouth with Endometriosis. She then went on to complete her Health Sciences Master’s degree with a first-class pass after writing her dissertation on the same topic as her undergrad degree but on almost a thousand women across the globe.
Finally, Jodie has started a research PhD that is investigating the relationship between endometriosis care and various factors that may affect it.
“It is truly disheartening to know that so many people are suffering due to the lack of education surrounding a disease that affects so many”
Kirsty Rogers
Chair of Trustees Endometriosis South Coast
Education and Training Manager
Kirsty has joined the Trustee team at Endometriosis South Coast to help advocate for a change in endometriosis treatment pathways and diagnosis as a result of endometriosis causing physical health, mental health and personal implications for the majority of her life. Having been put on contraceptives at age 12 as resolution to extremely heavy, long and painful periods, Kirsty spent the next 14 years being put on various contraceptives to try and help manage, at that time, a non-diagnosed condition being told that some woman get heavy periods and pain is ‘normal’.
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At age 23, Kirsty sought private treatment to receive a diagnosis by laparoscopy of Stage 4 Endometriosis. What followed was bouncing between gynaecology and gastroenterology appointments and numerous subsequent laparoscopies to continue to remove aggressive adhesions from her womb, ovaries, bladder and bowel. Despite this Kirsty managed to become pregnant at age 29 having a son and having some respite from the condition for 4 months before the symptoms flared up again. Finally, after being on high dose opioids (Tramadol) and Zoladex for 2 years in order to be able to continue to work, Kirsty made the decision to have a hysterectomy and oophorectomy in February 2017 at which point it was discovered that she also had adenomyosis.
Kirsty has worked in healthcare research for over 17 years, mainly in the NHS, and is passionate about using Evidence Based Medicine to change the lives and treatment options for patients, particularly those suffering from long term, chronic conditions. She will use her knowledge of NHS governance, research practice and her network to support Endometriosis South Coast’s mission to spread awareness of this debilitating condition and contribute to further research to better treatment options and help promote patient’s choices, aiding our beneficiaries voices to be better heard through co-produced research.
Kate Dunstone
Social Media and Marketing Trustee, Endometriosis South Coast
Head of Marketing, Faculty of Sexual and Reproductive Healthcare
In June 2021, we welcomed Kate Dunstone as our new Social Media Trustee. Kate’s role is to assist with the development and updating of content on the Endometriosis South Coast website, maintain our presence across our social accounts, and other PR and Marketing related duties to continue to raise awareness. Kate works as Head of Marketing at a London-based charity for her ‘day job’.
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Living with her husband, two small children (and cat!) on Hayling Island, life is busy but Kate says she found her ‘calling’ when the position of Social Media Trustee was advertised, “I always hoped to become a charity trustee one day – bringing my marketing skills, and experiences with women’s health issues together. I was so inspired by Jodie and the Endometriosis Southcoast Facebook Support group – this role felt like the right fit. I can’t wait to get started!”.
Penny Chamberlain BSc, MRes
A.I and Research Trustee, Endometriosis South Coast
Researcher and Data Analyst
As a dedicated advocate for positive change, Penny brings to Endometriosis South Coast a background in research and data analysis with a Bachelor of Science (BSc) in Biomedical Science and a Master of Research (MRes) in Reproductive Science and Women’s Health. As a researcher, Penny contributes her analytical skills to the board, striving for evidence-based strategies that consider the diverse needs within the endometriosis and adenomyosis community.
Bethany Wells
Person led HR Trustee, Endometriosis South Coast
Business Graduate
I am an advocate for equality, diversity, and inclusion (EDI) with a background in HR and ED&I. Leveraging my expertise, I contribute valuable insights to EDI discussions, staying current with the latest news and legal developments. Beyond mere advocacy, I am dedicated to fostering inclusive environments, drawing on my understanding of HR and ED&I dynamics. I am committed to adapting strategies to the evolving landscape of EDI in Endometriosis South Coast, aiming to create workplaces and communities everywhere, where everyone feels valued and included and their whole selves.
Sally Wason
Treasurer, Endometriosis South Coast
Client Manager in Accountancy
Sally is deeply committed to Endometriosis South Coast’s mission of advocating for change in endometriosis diagnosis and treatments as the Charity grows to reach a wider catchment. She believes strongly in the importance of giving back to the community using her 7 years’ experience of working in various roles within the accountancy industry to contribute to the board of trustees. Sally’s day job is that of a client manager at an Accountancy practice in Chichester, West Sussex.
Beth Prescott
Support Group Facilitator Lead
Counselling Psychology Student
Endometriosis South Coast is a charity which is close to my heart. I have struggled with endometriosis symptoms since I was about 12, and although my symptoms were not problematic until I was 17, I was still not diagnosed till I was 22 years old, after 2 surgeries, umpteen tests & scans, numerous referrals, being pushed from pillar to post, being told my pain was all in my head due to my mental health challenges. When I was diagnosed I didn’t receive any information on the condition, I felt completely alone, and I searched the internet which just bombarded me with scary information. But thanks to Endo south coast, their trustees & the support groups, I am now armed with knowledge and strength, and I can dismiss the myths and misinformation that we now know is outdated. I have made some life-long friends through this charity & their support group. Not only have they supported me through my Endo journey, they have also supported me through so much more and I couldn’t be more grateful to them for everything they do, without them I wouldn’t be where I am now.
Without the support of this charity, I would have never felt able to embark on the journey to university, conduct my own endo research, complete an undergrad degree in psychology & begin a master’s degree, in coaching psychology, which I strive to use as building blocks to further support others on their own journeys!
It means the world to me to be able to give back, and I am so grateful to be part of the team, advocating and running support groups for our community, giving others the love, support, empowerment and education that got me to where I am today, and I cannot wait to see what the future brings for us all!
Lizzie Downhill
Volunteer Creative Designer and Social Media Account Manager
I have been in the design industry for over 6 years since leaving university. I love my job and all things creative so wanted to take my skills and apply them where they can make a difference. I am always looking to grow, extend my network and keep my creative mind buzzing. I saw this advert and knew I wanted to apply. Whilst I haven’t been affected by Endometriosis, I am passion about sharing the facts and looking forward to learning and hopefully making a difference.
Jessica DeLord
Volunteer Content Creator
I chose to volunteer at endometriosis south coast because I wanted to have a place where I felt understood in experiencing the life changing illness that is Endometriosis. I wanted the opportunity to share and explore my creativity through assisting in their marketing as well as educating myself on the charity in the process.
Ellie Smith
Volunteer Content Creator
Ellie is an enthusiastic, volunteer content creator for Endo South Coast. Taking her half a decade of experience, working with everyone from schools to the agriculture industry, she is excited and passionate about using her skills to help education, spread awareness, and connect with the endometriosis community. Having spent her youth in total confusion, battling her own reproductive healthcare issues, she is delighted to be able to share her tips and support others facing challenges. For Ellie, no one should be stuck in the dark with their body!
Anna Chui
Volunteer Content Creator
Anna Chui is a content creator volunteer at Endometriosis South Coast. With a strong background in content strategy, particularly in personal development, Anna draws from her own battles with endometriosis to educate and inspire others. Her journey, marked by painful symptoms and recent surgery, fuelled her passion for raising awareness about the condition. Committed to the belief that knowledge profoundly influences health and lifestyle choices, Anna aspires to empower those facing similar challenges, providing both information and support.
Jaredine Smart
Volunteer Project Manager
BA Hons, PGCE Education and studying for an MBA in project management, I joined the charity this year to manage exciting projects in aim to spread more awareness on women’s health. I am happy to be a part of such a great, dynamic team who are dedicated to research and education of women and the complexities of endometriosis which is commonly found in WOC. In my early career, I have gained much experience managing the lifeline of projects in events and different industries, so I am excited to support vision of the charity and further the impact of research and development of Endometriosis Southcoast.
Olivia Smith
Volunteer Events Co-Ordinator
Olivia gives her time to help people who genuinely need resources and to put on events for our beneficiaries.
She is a very keen coffee enthusiast.
Laury Popoff
Volunteer Events Co-ordinator
A French in England that decided to move in during Brexit, so guess what I love challenges! I’m a freelance and business owner. I’m passionate about wellbeing, cooking, writing and traveling. I love improving myself and my environment 😉.
I’ve decided to join Endometriosis South Coast because I love giving, and event planning, also I wanted to support a charity that is relatively close to home.
Jeannie Lymath
Volunteer
Jeannie is a dedicated holistic therapist, founder of Solecare Healing and head of the Solecare Academy of Healing South Coast, where she provides transformative reflexology and crystal healing training. Passionate about addressing the root causes of health challenges, she integrates a wealth of knowledge in holistic wellness practices, guiding clients toward healing, balance and self care.
As a volunteer for endometriosis south coast, she brings her healing expertise and compassionate care to those affected by endometriosis, linking her skills as a therapist to support her community through “Healing Hands in the Community”. This role allows her to give back by fostering awareness and offering relief to those navigating this challenging condition, driven by a commitment to empower others in their wellness journeys.