Fact Friday: The Endometriosis-POTS Connection
New research finds that 1 in 6 people with POTS (a dysautonomia condition causing dizziness and a fast heart rate) also have endometriosis, a finding that shows just how whole-body this condition really is. If you live with endometriosis, you've probably had moments where your body throws something new at [...]
Living With an Invisible Illness
The reality of chronic pain with endometriosis and adenomyosis You can be in agonising pain and still look completely fine. That is one of the hardest parts of living with endometriosis or adenomyosis: the gap between how much pain someone is carrying and how little of it shows on [...]
Fact Friday: What Real Patients Say About Dienogest for Endometriosis Pain
New real-world research asked 146 endometriosis patients what dienogest actually did for their pain, their quality of life, and their side effects, here's what the study on this common endometriosis treatment found. Happy Fact Friday! Each week we pick one piece of new endometriosis or adenomyosis research and break it [...]
How Would It Be Seen?
Christie's Endometriosis Story For everyone living with endometriosis, there is a private language of pain that the outside world almost never gets to read. It is a condition that can colour entire days, relationships, and futures, and yet leaves no outward mark on the body it lives in. This [...]
Could a Cholesterol Drug Already on Pharmacy Shelves Help Treat Endometriosis Pain?
A cheap, everyday cholesterol pill eased pain and reversed disease-linked genes in a lab model, and was linked to fewer diagnoses in real-world health records. Happy Fact Friday! Each week we pick one new endometriosis or adenomyosis study and translate it into plain English. This week's find: a study in [...]
Every Body Deserves Care – World Sexual Health Day
Sexual health is not a topic many of us are taught to talk about openly, and for people living with endometriosis or adenomyosis, that silence can be even harder to break. Pain, fatigue, bloating and unpredictable symptoms can all affect intimacy, and yet conversations about sex and chronic illness [...]
